Living with ME (Myalgic Encephalomyelitis) / CFS (Chronic Fatigue Syndrome), Fibromyalgia & Lupus


Myalgia pain in muscles or group of muscles.

ME (Myalgic Encephalomyelitis) is a neurological condition that presents itself through myriad of  symptoms:  Extreme fatigue, severe muscle pain, sleep disorders and cognitive dysfunction-to name a few.

ME often effects the autoimmune and central nervous system.  Although there is much research going on, they (the BIG THEY) are unsure why people are soooo debilitated by this illness. Still the causes and cures remain unsolved. There is no straight forward answer.   However, there are lifestyle suggestions, resources and strategies I have found to make living with ME more comfortable.  I will describe some of these throughout this blog.  Though personal to my own experiences, you may wish to try.

CFS (Chronic Fatigue Syndrome) is closely associated with ME – so closely that people often call one the other.  They also share very similar symptoms, unknown causes an cures.  However, from what I have read and through personal experience I tend to believe that  Chronic Fatigue Syndrome defines the associated fatigue symptoms in ME.  EXTREME Fatigue for nearly all of the waking hours, like dragging around a heavy black Shakespearian curtain all day and night.  I do relate to studies that suggest that perhaps this is linked to an adrenalin disorder ; a surge of adrenalin to get me out of bed  (if at all that day)  that is worn out by the time I brush my teeth-if at all that day!!!!

FIBROMYALGIA – PAIN< PAIN< PAIN.  I can define this as PAIN IN MUSCLES.  Again classed as an auto immune disorder, there is unknown cause, unknown cure and is chronic (Long Term).  For me, the onset of this pain immediately followed the scarlet fever, however, researchers remain unsure of the pathological cause.

FIBRO FOG – Problems with mental processing such as accessing words, names, memory, concentration, and a general feeling of your mind being sedated by a heavy fog.

LUPUS – Like many auto-immune disorders the body is at threat from its immune system. There are 2 types of Lupus, Discoid and Systemic Lupus Erythematosus (SLE).  Discoid Lupus only affects the skin, resulting in uncomfortable rashes.  SLE causes the immune system to attack healthy tissues of an individual typically joints or internal organs.  This is a very difficult illness to detect because of its Chamaeleonidae nature.  I suffer from SLE and suspect that I have done so for many years prior to diagnosis.

AUTO-IMMUNE DISEASES – When the body’s immune system has either abnormally low activity or over activity.  When the immune system is over active, the body attacks and damages its own tissues.  If the immune system is deficient, this decrease the body’s ability to fight infections.

Please note that this is not meant to be a substitute for a clinical diagnosis or a medical journal etc.  The definitions here are very basic and based on my own gathering of knowledge.  If you feel that you may be suffering from any of these or other medical conditions, please see your Doctor, General Practitioner (GP) or a rheumatologist.

FMI – For more information, please refer to the links page on this blog site.

Thank you for reading,  FreeMeFibro

∼FreeMeFibro∼Living with #ME #MyalgicEncephalomyelitis #Fibromyalgia #Lupus #Spoonies #CFS #ChronicFatigueSyndrome #Raynauds Syndrome #chronicpain #autoimmune diseases



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