February 2011 I was treated for Scarlett Fever. The streptococci poison which riddled my body affected my central nervous system to such an extent that I was left with excruciating pain which bore through my bones, into my muscles, underneath my teeth and skated on the surface of my skin.
In the months to come, up and down New England Road I shuffled to and from rheumatology, haematology, cardiology, and radiology. I was diagnosed with ME (Myalgic Encephalomyelitis) and/or CFS (chronic fatigue syndrome ), Fibromyalgia and Lupus.
Other than a bagful of medication, a pamphlet on Lupus, and news that the Tuesday evening Fibromyalgia support group had recently closed because everyone was complaining of, you guessed it, their pain- I had no other concrete information on how to manage these conditions. And I was frightened.
‘That’s it – If I’m going to go, I’m going in comfort: curl up on that sofa in the electric blanket, eat Ben & Jerry’s and wait to die.’ I was just sooo tired.
Thank you for reading, FreeMeFibro
∼FreeMeFibro∼Living with #ME #MyalgicEncephalomyelitis #Fibromyalgia #Lupus #Spoonies #CFS #ChronicFatigueSyndrome #Raynauds Syndrome #chronicpain #autoimmune diseases
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